Category Archives: Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute

Dr. Anthony Fauci discusses the HIV rebound in the Mississippi baby and importance of HIV research ethics

Photo via dem10/iStockphoto.com

Photo via dem10/iStockphoto.com

The Friday, July 11th episode of the PBS News Hour featured a presentation on the young child from Mississippi who had been treated with early and unusually aggressive drug treatment after birth and then was seemingly virus-free for two years.

However, official just announced that the girl, now almost 4 years old, tested positive for HIV during a follow-up appointment last week. When asked about the trial that was to begin, Dr. Anthony Fauci of the National Institute of Allergy and Infectious Diseases emphasized the need to be ethical in the design of the study.

Please visit the PBS News Hour website for a video and full transcript of the program.

Issues of Research Ethics in the Facebook ‘Mood Manipulation’ Study: The Importance of Multiple Perspectives

 

By: Michelle Broaddus, Ph.D.

A new study using Facebook data to study “emotional contagion,” and the ensuing backlash of its publication offers the opportunity to examine several ethical principles in research. One of the pillars of ethically conducted research is balancing the risks to the individual participants against the potential benefits to society or scientific knowledge. While the study’s effects were quite small, the authors argue that “given the massive scale of social networks such as Facebook, even small effects can have large aggregated consequences.” However, participants were not allowed to give informed consent, which constitutes a risk of the research and the major source of the backlash.

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Issues of Research Ethics in the Facebook ‘Mood Manipulation’ Study: The Importance of Multiple Perspectives (full text)

 

By: Michelle Broaddus, Ph.D.

A recent paper published in the Proceedings of the National Academy of Sciences describes a mood manipulation experiment conducted by Facebook scientists during one week in 2012 that suggests evidence of “emotional contagion,” or the spread of positive and negative affect between people. The backlash to this publication has been significant. As two examples, Slate.com published a piece entitled “Facebook’s Unethical Experiment: It intentionally manipulated users’ emotions without their knowledge” and The Atlantic’s piece, “Even the Editor of Facebook’s Mood Study Thought It Was Creepy.”

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Welcome to the 2014 Fordham University HIV Prevention Research Ethics Training Institute Fellows

The Fordham HIV Prevention Research Ethics Training Institute is delighted to announce that the following individuals have been selected as the 2014 fellows:

Dr. Erin Bonar, University of Michigan

Dr. Erin Bonar, University of Michigan

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Sexual & Reproductive Health Program in South Africa Coordinated by Fordham RETI Fellow to be Funded by Mayor of Pretoria

Charmaine Thokoane, Fordham University RETI Fellow and Santander Universities International Scholarship Recipient

Charmaine Thokoane, Fordham University RETI Fellow and Santander Universities International Scholarship Recipient

South Africa has the highest rate of HIV infection in the world. Fordham University HIV Prevention Research Ethics Training Institute (RETI) Fellow Charmaine Thokoane is working to combat that statistic through a sexual and reproductive health program designed for 12-18 year-olds in South Africa. In fact, Thokoane’s work has caught the eye of the Mayor of Pretoria, who has agreed to fund the program she coordinates.

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Fordham RETI Fellows Publish in JERHRE Special Issue

RETI Cohort 1& 2 Fellows and Faculty

RETI Cohort 1& 2 Fellows and Faculty

Six Fordham University HIV Prevention Research Ethics Training Institute (RETI) Fellows recently published articles in a special issue of the Journal of Empirical Research on Human Research Ethics (JERHRE). The special issue highlights recent innovative research and scholarship on ethical issues critical to the responsible conduct of HIV prevention research.

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HIV Prevention Research Ethics Training Institute Now Accepting Applications for 2014

2013 HIV Prevention Research Ethics Training Institute Faculty, Fellows and Staff

2013 HIV Prevention Research Ethics Training Institute Faculty, Fellows and Staff

Now in its fourth year, the Fordham University HIV Prevention Research Ethics Training Institute (RETI) is now accepting applications for the 2014 Summer Institute and Mentored Research Program.

This NIDA-funded program, directed by Center for Ethics Education Director Dr. Celia B. Fisher, provides early career investigators in the social, behavioral, medical and public health fields with an opportunity to gain research ethics training.

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Introducing the Research Ethics Scales and Measures Website

How do you measure research on research ethics?

The Fordham University Center for Ethics Education in partnership with the HIV Prevention Research Ethics Training Institute has recently introduced Research Ethics Scales and Measures, a continuously-updated evidence-based research ethics resources website for investigators who wish to use scales and measures to study all aspects of research ethics.

The website contains an extensive bibliography on quantitative approaches to research on research ethics which is divided into the following categories: Consent Assessment & Enhancement, Institutional Review Boards, Investigator and Institutional Perspectives, and Participant Perspectives.

In addition to the website, the scales and measures are also available on this blog.

We welcome submissions of scales and measures on research on research ethics. Please contact Elizabeth Yuko (eyuko@fordham.edu) with submissions or for more details.

Fighting Stigma with Knowledge: RETI Fellow Brandon Brown Focuses on Peru

Dr. Brandon Brown

Dr. Brandon Brown

By: Elizabeth Yuko, Ph.D.

A new video from the University of California Irvine attempts to decrease the stigma attached to HIV through the personal stories of those affected by HIV/AIDS in Peru. Focusing on the only gay men’s health community center in Peru (Epicentro), the video features the work of Dr. Brandon Brown, the director of the Global Health Research Education and Translation (GHREAT) Initiative in the Program in Public Health at UC Irvine and a Fordham University HIV Prevention Research Ethics Training Institute (RETI) fellow.

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HIV Prevention Research Ethics Training Institute Fellow Examines HIV Testing in Appalachia

Dr. Tania Basta

Dr. Tania Basta

By: Elizabeth Yuko, Ph.D.

Appalachia is home to more than 20 million people, yet researchers often overlook the area. Dr. Tania Basta is trying to change that.

Basta is a Fordham University HIV Prevention Research Ethics Training Institute (RETI) Fellow, and is working on a mentored research project on HIV testing in rural Appalachia. She was recently honored with the American Public Health Association’s (APHA) Excellence in Abstract Submission Award for her abstract entitled “Factors influencing HIV testing among individuals living in rural Appalachia.” She will present her research at the APHA’s annual meeting in Boston in November.

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HIV Prevention Research Ethics Training Institute Fellow Publishes Study on HIV Testing and Facebook

Dr. Sean D. Young, a 2013 Fordham University Research Ethics Training Institute Fellow

While Facebook may be used primarily to reconnect with old friends and share vacation photos, a recent study suggests that it  may also be an important tool in HIV prevention.

A new study by Fordham University HIV Prevention Research Ethics Training Institute Fellow Dr. Sean D. Young of UCLA found that using social media and online communities not only leads to increased HIV testing and encourages significant behavior change among high risk groups, but also turns out to be one of the best HIV-prevention and testing approaches on the Internet.

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Fordham University Research Ethics Training Institute Faculty Member Discusses the Ethics of HIV Cure Research

Recently, Dr. Jeremy Sugarman, Fordham University HIV Prevention Research Ethics Training Institute faculty member, discussed the ethics of HIV cure research in the Annals of Internal Medicine.

In an article published on August 13, 2013, Dr. Sugarman, Professor of Bioethics at the Johns Hopkins Berman Institute of Bioethics, contends that as HIV cure research progresses, ethical implications must be taken into consideration in order to protect the rights, interests, and welfare of all research participants involved.

Please click here for the full article.

Santander Scholarship Recipient Dr. Stella Njuguna examines post-trial access to Truvada among HIV-I discordant couples in Kenya

Dr. Stella Njuguna, a 2013 recipient of the Santander Universities International Scholarship

Dr. Stella Njuguna is a Research Officer at Kenya Medical Research Institute

Recent trials have indicated that the drug Truvada® is effective in preventing the acquisition of HIV.  However, the participants of one such trial consisting of serodiscordant couples conducted in Kisumu, Kenya, do not have post trial access (PTA) to Truvada®. Who is responsible for post-trial access for the participants?

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Welcome to the 2013 HIV Prevention Research Ethics Training Institute Fellows

The Fordham HIV Prevention Research Ethics Training Institute is pleased to announce that the following individuals have been selected as the 2013 fellows: Dr. Stella Njuguna (Kenya Medical Research Institute of the University of California Berkeley), Dr. Nicole Overstreet (Yale University), Dr. Alexis Roth (University of California San Diego), Dr. Darpun Sachdev (HIV Vaccine Fellow, San Francisco Department of Public Health), Dr. Andrew Spieldenner (Hofstra University), and Dr. Sean Young (University of California Los Angeles). Continue reading