Genomics, Big Data, and Broad Consent: a New Ethics Frontier for Prevention Science

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In a new article published in Prevention Science, Dr. Celia Fisher, Director of Fordham University’s Center for Ethics Education and Deborah Layman, PhD Candidate of Fordham University’s Applied Developmental Psychology program, discuss the genomic revolution and emergence of big data to understanding the ethical implications for prevention scientists. Additionally, Fisher and Layman write about the uncertainty arising in science in light of new regulations, such as the Final Rule set to address ethical challenges related to participant consent and confidentiality.

The article describes modified regulations and challenges affecting traditional informed consent for prevention research, describes the rationale and requirements for obtaining broad consent, and concludes with a discussion of “future challenges involving ongoing transparency and protections for participants and their communities.”

The article, “Genomics, Big Data, and Broad Consent: a New Ethics Frontier for Prevention Science” can be downloaded online from SpringerLink.

Celia B. Fisher, Ph.D. is the Fordham University Marie Ward Doty University Chair in Ethics and Director of the Center for Ethics Education and the HIV and Drug Abuse Prevention Research Ethics Training Institute. Fisher’s Decoding the Ethics Code: A Practical Guide for Psychologist, is now in its fourth edition from Sage Publications.

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