Health Care and Bioethics
DNA database highlights need for new medical privacy protections
Creation of a national repository of genetic information is seen by some as crucial to reducing medical costs and improving people’s healthcare.
‘Big data’ could mean big problems for people’s healthcare privacy
Public and private insurers are spending millions of dollars on systems that can predict people’s future healthcare needs.
Colorado Wrestles With Ethics Of Aid In Dying As Vote Looms
Colorado man says he would like the option to end his life rather than face a painful death and advocates for Colorado’s Proposition 106 or “death with dignity.”
The NIH needs to review the ethics of research on primates
Congress asked the National Institutes of Health to review “its ethical policies and processes” on nonhuman primate research “to ensure it has appropriate justification for animal research protocols.”
Breast Cancer Death Rates Are Down, But Racial Disparities Persist
Women are less likely to die of breast cancer than they were a decade ago, but not all women are benefiting from that trend.
Posted in Newsfeed, Uncategorized
Tagged Animal research, Bioethics, Cold War, election, Ethics, fashion, Health care, Health disparities, Law, NIH, Politics, Research Ethics, robots, Wall Street, war
The recently published article on doctor’s lack of expertise in treating transgender patients in The Guardian is an important step forward in highlighting current disparities in healthcare services for this population. The study, based on interviews with sample of 23 physicians and psychologists who chose to work with transgender patients, focused on current challenges in providing gender affirming care for individuals who are seeking medically supported transitioning treatments, such as hormonal replacement therapies (HRT).
A recently completed study by Celia B. Fisher, Ph.D. and her colleagues, funded by the National Institute for Minority Health and Health Disparities (NIMHD) confirms the need for greater medical training, based on the reports of 228 transgender males, females and gender non-conforming youth ages 14 – 21. “Fear of stigmatization is a significant barrier to healthcare among these youth,” notes Fisher, Director of Fordham University’s Center for Ethics Education, “and in our study, 51% reported they did not discuss their transgender identity with their primary health care providers out of fear that the provider would not be accepting.”
Dr. Jonathon Rendina, Hunter College, CUNY
The minority stress theory suggests that health disparities experienced by gay and bisexual men (GBM) and other sexual minorities can be explained in terms of stigma-related stressors such as discrimination at work, school, religious institutions, communities and families. The unique stressors of an HIV-positive status experienced by GBM, however, has been overlooked within research on minority stress.
Fordham University Center for Ethics Education HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI) Fellow Dr. Jon Rendina, an Assistant Professor in the Department of Psychology and Faculty Investigator and Director of Quantitative Methods at The Center for HIV Educational Studies & Training (CHEST) of Hunter College, CUNY, recently addressed this issue within a paper published in Annals of Behavioral Medicine.
Dr. Rendina has been conducting HIV research with GBM for more than ten years. He explained the need to thoroughly test “the role of internalized stigma about sexual orientation, or internalized homophobia, and internalized HIV stigma within a unified model to see whether one or both have an impact on HIV-positive gay or bisexual men.” Although it is already established that GBM are negatively impacted by internalized sexual minority stigma, the purpose of this study was to further explore the impact of HIV-related stressors on the health of GBM.
Posted in Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute, Uncategorized
Tagged Ethics, Fordham University, Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute, Health disparities, HIV, LGBT Ethics, Research Ethics, RETI, sexual health, Stigma
By Celia B. Fisher, Ph.D.
A 20-year, multi-million dollar study of more than 10,000 New Yorkers scheduled to begin next year claims that it will enable the development of theories, therapeutics, and policies to improve the health and quality of human life. Although still in the planning stages, the breadth of the data collection proposed (including health habits, biological data, and geospatial mapping) combined with the lack of detail accompanying such a widespread publicity effort raises questions regarding the extent to which the research risks of such an endeavor have been well thought out.
Posted in Evidence-Based Ethics, In the News
Tagged Celia B. Fisher, demographics, ethnicity, Health disparities, Kavli Human Project, National Institutes of Health, New York City, New York University, NIH, race, racial inequalities, Research Ethics, research funding
Posted in Contemporary Ethical Issues, Evidence-Based Ethics
Tagged Brian Mustanski, Celia B. Fisher, Fordham University, Justice, LGBT youth, Mental health, mental health research, Research Ethics, sexual health, Substance use
Central America hosts a thriving sex work industry that is a key source and transit region for sex trafficking and undocumented migrants engaged in sex work. Sex workers – particularly those who are migrant – are at high risk for HIV and other sexually transmitted infections as well as physical abuse and in some cases murder. However, the existing network of international, national, and local criminal and human rights policies applicable to sex workers can be confusing and contradictory, not only in the context of access to sexual health preventions and interventions, but also for investigators seeking to conduct that can lead to effective sexual health services.
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Tagged Celia B. Fisher, Central America, Elizabeth Yuko, Fordham University Center for Ethics Education, Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute, Health disparities, Human rights, international law, key populations, Lianne Urada, migration, NIH, Public Health, Research Ethics, Risks and benefits, Sex Workers, Shira Goldenberg, Vulnerable populations
The dearth of HIV prevention research on LGBT individuals under 18 years of age is at least partially a result of conservative Institutional Review Boards (IRBs), according to new research by Fordham University Center for Ethics Education Director Dr. Celia B. Fisher, and colleague Dr. Brian Mustanski of Northwestern University’s IMPACT Program.
Fisher and Mustanski describe this problem in their article, “HIV Rates Are Increasing in Gay/Bisexual Teens: IRB Barriers to Research Must Be Resolved to Bend the Curve,” to be published by the American Journal of Preventative Medicine.
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Tagged AIDS, American Journal of Preventative Medicine, bisexual teens, Brian Mustanski, Celia B. Fisher, Ethics, Gay teens, HIV Prevention, HIV rates, HIV research, institutional review boards, IRBs, LGBT youth, Research Ethics, Reuters