“She Can’t Help The Choices She Makes”

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STUDENT VOICES | CHYNN PRIZE FIRST-PLACE WINNER

By Madeleine Cardona

I will never forget the day my mother got diagnosed. I could swear that just yesterday I was thirteen years old waiting anxiously to be called in from the waiting room of some fancy New York State doctor’s office. I was young, but I had some idea of what was going on. I knew my parents and I were there because they were going through a divorce and fighting for custody of me. What I did not know was that we were about to endure a court-ordered psychiatric evaluation and that the results were going to change my life forever.

“Madeleine, your mom is very sick,” the psychiatrist attempted to explain to me. I did not understand. I did not know a sick person could look perfectly healthy. “It’s not a physical sickness, it’s in her head. She has a mental disorder called Paranoid Schizophrenia.” She went on using big words to explain how my mother’s brain “wasn’t like other people’s brains.” I sat there listening closely, hanging on every word the woman was saying to me. “She can’t help the choices that she makes, it’s not her fault that she is the way that she is. She needs help.” Every day since that day in the doctor’s office, that remark replays in my head over and over. “She can’t help the choices she makes.”

That is what gave me the most trouble. I sat around for years and years watching the choices that my mother was making, unable to intervene. If she cannot help the choices she makes, why could my dad or my mother’s other family not make the choices for her? Why could nobody make her take medication? I eventually learned that it was because my mother was sick, but “not sick enough.” The court ruled in favor of autonomy and said that my mother still had the right to make her own medical decisions. According to them she was functional and was not posing an immediate danger to herself or others. I understand autonomy. Autonomy is defined as “a principle in which a person should respect the rights of other individuals to freely determine their own choices and decisions” (Jonas). I understand how important free will and the ability to make choices about your own body are. It is hard for me, however, to understand how you can continue to honor a person’s right to make their own decisions, when every decision they make is only hurting them. It is hard to sit there, as a loved one, and not want to just make them take the medication they need to get better, or force them participate in that research study that just might help.

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Ethics & Society Newsfeed: March 10, 2017

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Politics

White House Slammed by Federal Ethics Chief for Not Disciplining Kellyanne Conway
U.S. government’s official ethics watchdog blasted White House for not taking disciplinary action against senior counselor Kellyanne Conway for promoting Ivanka Trump’s products on TV

Trump’s Ethics Order Seen as Boost for Shadow Lobbying
President Trump’s speech to the joint session of Congress on Tuesday explains executive order to ban lobbying for five years for officials who leave office – addresses the ethics of “draining the swamp”

George W. Bush’s ethics lawyer says Jeff Sessions’ denial of Russia talks ‘a good way to go to jail’
Alleged ethics violations Jeff Sessions may have made when he claimed under oath that he “did not have communications with the Russians”

ACLU lawyer files ethics complaint against Sessions over Russia testimony: report
An American Civil Liberties Union (ACLU) lawyer, Christopher Anders, formally filed an ethics complaint against Attorney General Jeff Sessions over his testimony to the Senate Judiciary Committee denying any contact with Russian officials

Trump’s team nixed ethics course for White House staff
White House staff has received no ethics training under the Trump transition team and now presidency

Medical Ethics

House Republicans would let employers demand workers’ genetic test results
Bill moving through Congress would allow companies to require employees to undergo genetic testing or risk paying a penalty of thousands of dollars; employers see that genetic and other health information

Prisoners with serious mental health problems face urgent treatment delays
Prisoners in the UK are supposed to receive mental health services after being referred to such a unit within 14 days and new official numbers have indicated that regulations are not being followed

New pregnancy testing technique needs limits say ethics body
Press release from the Nuffield Council on Bioethics explores the ethics of Non-Invasive Prenatal Testing (NIPT) and explains why they are calling for a moratorium on the use of the new technology

Ethical Implications of User Perceptions of Wearable Devices
Wearable devices can save time at medical appointments and may even save lives – ethical implications of having large amounts of personal information stored in devices that are shared with third parties

When Evidence Says No, But Doctors Say Yes
Medical costs increasing and patient benefits are declining  – ethical conundrum of why medical professionals continue to prescribe unnecessary treatment, and calls for responsible regulation

States Wrestle With Legalizing Payments For Gestational Surrogates
Legislators proposed a bill that would regulate gestational surrogacy — potentially adding legal oversight to fertility clinics that facilitate these pregnancies

Environmental Ethics

EPA environmental justice leader resigns, amid White House plans to dismantle program
Key environmental justice leader at the Environmental Protection Agency has resigned, saying recent budget proposal to defund work would harm the people who most rely on the EPA

Why Won’t American Business Push for Action on Climate?
Fortune 500 companies who tout themselves as “green companies” have not stepped up to the plate when it comes to lobbying for climate change regulation

WCC participates in UN panel discussion on climate ethics
World Council of Churches (WCC) explains their involvement on UN’s panel discussion on climate ethics and why a human rights framework should be considered when taking action on climate change

Technology

Why we must teach morality to robots
Ethical input with robots needs to come before, not after, developing other skills

Ethics And Hacking: What You Need To Know
Forbes Technology Council members weigh in on ethics and hacking

Yes, what you do or say in an Uber may be recorded
Uber users to watch what you say and do in the back of those vehicles, as it just may be recorded

 

Its not just mental health studies: Doctors rarely ask adolescent patients about their sexual orientation & LGBT youth are afraid of bias

A recent report underscores the paucity of mental health research relevant to LGBT patients.  According to Celia B. Fisher, Ph.D., Director of the Fordham University Center for Ethics Education this unfortunate situation is not unique to research studies.

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APHA Ethics Section Interview with Dr. Celia B. Fisher on Conversion Therapy Report

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The following is an interview with the American Public Health Association’s Ethics Section with Fordham University Center for Ethics Education Director Dr. Celia B. Fisher who served as an advisor for a White House panel on conversion therapy.

In April of this year, President Barack Obama announced his support for state efforts to pass Leelah’s laws. Such laws seek to ban conversion therapy, a practice which claims to change individuals with LGBTQ identities to a heterosexual identity and is named for an American transgender girl who committed suicide after undergoing conversion therapy. Celia B. Fisher is the Marie Ward Doty University Chair in Ethics and Director of the Center for Ethics Education at Fordham University and an Ethics Section member. She served as an advisor for a White House report released last fall, Ending Conversion Therapy: Supporting and Affirming LGBTQ Youth.

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Ethics & Society Newsfeed: February 19, 2016

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Participants in the Tuskegee Syphilis Experiment. | Photo via National Archives Catalog

Voices for Our Fathers Keeping Memory of Horrific Study Alive
The Tuskegee syphilis experiment recruited poor men with “bad blood” from rural Macon County, Ala., as test subjects. The study went on for decades, despite its ethical issues.

‘Government only pays for the positive outcomes.’ A strikingly new approach to social problems.
Two states announced Tuesday that they would experiment with an unusual method of financing human service programs that allows governments to pay nothing unless the programs are successful.

Needle Exchanges Can Now Get Federal Funding
Lifting the ban underscores a growing recognition that needle exchange programs can help reduce the the spread of infectious diseases

A First-Aid Class for Mental Health
Most people know how to help someone with a cut or a scrape. But what about a panic attack?

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Are the Workers Alright? Moral Distress Among Mental Health Researchers

By Adam L. Fried, Ph.D.

Psychologists and psychiatrists have devoted increased attention to their own self-care in response to high levels of stress in treating individuals with serious mental health conditions. Little attention, however, has been paid to those conducting research with these populations and the unique moral dilemmas encountered by researchers on the front lines.  This is especially true for the graduate students, research assistants, and other research staff who are out in the field or in hospitals providing research-related clinical assessments and interventions, as well as other more traditional research tasks, such as participant recruitment and enrollment, with individuals with high levels of anxiety, depression, and trauma.

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Ethics and Society Newsfeed: May 30th 2013

Go-Ahead to Develop Synthetic Blood in Scotland
Researchers have been given a licence to use stem cells to manufacture blood that could eventually be tested on people.

Female and Transgender Sex Workers in Mumbai Face Barriers to Sexual Health Services
Female and transgender sex workers face limited access to healthcare, social discrimination, uncertain income and police harassment.

Continue reading “Ethics and Society Newsfeed: May 30th 2013”